Information needs of adolescents with cancer.
نویسندگان
چکیده
Adolescents with cancer (AWC) have poorer treatment outcomes as well as higher incidence and mortality rates than do younger children, and they face additional challenges related to normal developmental issues of adolescence. Although research has shown that information on the cancer experience improves outcomes by decreasing uncertainty and increasing perceived support, little is known about the types of information AWC need and want. This study describes how AWC rate the importance of specific cancer-related information, analyzes gender and age group differences, and compares 2 different time-since-diagnosis groups of AWC. The sample consisted of adolescents with newly diagnosed cancer (n = 74) and those 1 to 3 years from diagnosis (n = 39). The Information Preferences of Adolescents (IPA) Scale was used to measure the adolescents' information needs. Both samples of AWC rated the need for information as high. There were no significant differences by age, but females had significantly higher total scores for both groups and for many item means in the newly diagnosed group. Qualitative analysis of the additional write-in items generated 4 themes: treatment/side effects, uncertainty, social issues, and personal/emotional issues.
منابع مشابه
تبیین نیازهای آموزشی و چگونگی ارایه خدمات آموزشی مرتبط با سلامت دختران نوجوان: یک مطالعه کیفی
Background and purpose: Âlthough much has been written about the health status of adolescents, little qualitative research has been published on educational health needs of female adolescents. The purpose of this study was to describe the educational health needs of female adolescents. Materials and methods: Ïn this qualitative study, 67 female adolescents between 12-18 years of age and 11...
متن کاملInformation needs of adolescents when a mother is diagnosed with breast cancer.
This pilot study was undertaken to increase our understanding of the information needs of adolescents when a mother is diagnosed with breast cancer. In-depth interviews with 13 adolescents provided insight into the types of questions they had at the time of their mother's diagnosis and how satisfied they were with the access they had to information. These adolescents had many questions about ca...
متن کاملDevelopment and validation of the health information needs questionnaire for families of children with cancer
متن کامل
Information Provision for Adolescents with Cancer
Recent research has provided a detailed insight into what information cancer patients as a generic group require and we now understand that this requirement changes during the disease episode. This paper will focus on the information needs of adolescent cancer patients as little research has been done in this area and unlike every other group of cancer patients very little improvement in inform...
متن کاملبررسی میزان آگاهی و نیازهای آموزشی درنوجوانان مبتلا به تالاسمی ماژور و عضو فعال خانواده ی آنها در بندر عباس
Introduction: Thalassemia can impose adverse effects on the individual, family and community. It is therefore important to specify the needs of children with thalassemia and their parents. This study intended to assess the knowledge and educational needs of adolescents suffering from thalassemia major and active members of the family in Bandar Abbas. Methods: This cross-sectional descriptive...
متن کاملذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید
ثبت ناماگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید
ورودعنوان ژورنال:
- Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses
دوره 21 6 شماره
صفحات -
تاریخ انتشار 2004